Category: Everyday Fundation

Conference on Rare and Complex Diseases
2 de March de 20204 de May de 2021
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Conference on Rare and Complex Diseases

Noelia Foundation participates in the Conference on Rare and Complex Diseases at the Hospital Sant Joan de Déu in Barcelona Last February 27, 2020, the Conference on Rare and Complex Diseases and 1st Exhibition of Patients’ Associations was held, organized and hosted by the Hospital de Sant Joan de Déu Research Institute (IRSJD) and the...

VI Day of families with Neuromuscular Diseases
28 de October de 20194 de May de 2021
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VI Day of families with Neuromuscular Diseases

One more year Noelia Foundation present in the Day of families with Neuromuscular Diseases, organized by the NRM team of the Sant Juan de Dios Hospital in Barcelona. These have been very rewarding days, since we have seen that the effort of the associative movement is vital, so that the research projects continue. We have...

Fundación Noelia makes a new donation of € 44,000
30 de July de 20194 de May de 2021
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Fundación Noelia makes a new donation of € 44,000

The Hospital Sant Joan de Déu, in Barcelona, echoes the new donation of the Noelia Foundation to continue financing the research project “NATURAL HISTORY, DIAGNOSIS AND TREATMENT OF COLLAGEN VI-RELATED MUSCULAR DYSTROPHIES”, which enters its second phase of action. Read the full story here. Thank you all for making this possible!

2019 Congenital Muscle Disease Scientific & Family Conference
29 de July de 20194 de May de 2021
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2019 Congenital Muscle Disease Scientific & Family Conference

Last July, Noelia Foundation attended the 2019 Congenital Muscle Disease Scientific & Family Conference organized in Chicago by Cure CMD, an event that brought together researchers from around the world to share their experience on these congenital diseases. Once again, Noelia Foundation was present at this unique reference event to learn first-hand about the progress that...