FUNDACIÓN NOELIA is a non-profit organization based in Catalonia, but with an international character, which aims to raise funds to advance research and find the cure for all those children suffering from muscular dystrophy Congenital collagen deficiency VI.
Identifying data of the owner of the Web
In compliance with the duty of information stipulated in the applicable legislation for the protection of personal data, as well as in article 10 of law 34/2002 of 11 July on services of the Information society and electronic commerce, it is reported that the This website is owned by:
NOELIA Foundation with CIF G55664387 registered office in Ripollés N º 38 43894 Lligallo del Ganguil, Camales (Tarragona)
The person responsible for the processing of personal data, as well as the obligations of the owner of the website will be assumed by the entity depending on the type of service in question.
This information complies with and regulates the terms of use, the limitations of liability and the obligations that users of the WEB site assume and undertake to respect.
“page “: Domain with own services that are made available to Internet users.
“User ” means a natural person who uses or navigates the page, on his or her behalf or in the legal person who represents.
“Content “: Are the pages that make up the whole of this domain, which make up the information and services that FUNDACIÓN NOELIA makes available to Internet users. They contain messages, texts, photographs, graphics, icons, logos, technology, links, textures, drawings, sound and/or image files, recordings, software, appearance, graphic design and source codes and, in general, any kind of material Content on the page.
“Web “: A technique that describes the system of access to information via the Internet, which is configured by means of pages made with HTML or similar language, and programming mechanisms such as Java, JavaScript, PHP or others. In these pages designed and published under an Internet domain name are the result of the information that the owner makes available to internet users.
“hyperlink “: Technique by which a user can navigate different pages of the web, or on the Internet, with a simple click on the text, icon, button or indicative that contains the link.
“Cookies “: Technical medium for “traceability” and tracking of browsing on websites. They are small text files that are written to the user’s computer. This method has implications for privacy, so NOELIA Foundation will notify timely and reliably of its use.

The simple use of the page gives the status of user of the page, either natural or legal person, and necessarily implies the full acceptance, full and without reservation of each and every one of the clauses and general conditions included in the Legal notice. If the user is not satisfied with the terms and conditions of use of this legal notice, it is refrain to use the page.
This legal notice is subject to changes and updates so the version published by FUNDACIÓN NOELIA may be different at any time the user accesses the Portal. Therefore, the user must read the Legal notice in each and every one of the occasions in which it accesses the page.
Through the page, Fundación Noelia makes it easier for users to access and use various content published via the Internet by Fundación Noelia or by authorized third parties.
The user is obliged and undertakes to use the page and the contents in accordance with the legislation in force, with the legal notice and with any other notice or instructions placed in his knowledge, either by means of this legal notice or in any other place Within the contents that make up the page, as well as with the norms of coexistence, the moral and generally accepted good customs.
To this end, the user obliges and undertakes not to use any of the contents for illicit purposes or effects, prohibited in the Legal notice or by the legislation in force, detrimental to the rights and interests of third parties, or that in any way may damage , to disable, to overload, to impair or to prevent the normal use of the contents, the computer equipment or the documents, files and all kinds of contents stored in any computer equipment own or contracted by FUNDACIÓN NOELIA of other Users or any Internet user (hardware and software).
The user is obligated and undertakes not to transmit, disseminate or make available to third parties any kind of material contained on the page, such as information, texts, data, contents, messages, graphics, drawings, sound and/or image files, Photographs, recordings, software, logos, trademarks, icons, technology, photographs, software, links, graphic design and source codes, or any other material to which it has access in its user status of the page, without this enumeration having limiting nature.

Likewise, in accordance with all this, the user may not:
• Reproducing, copying, distributing, making available or otherwise communicating publicly, transforming or modifying the contents, unless it has the written and explicit authorization of FUNDACIÓN NOELIA which owns the corresponding Rights, or that this is legally permissible.
• Delete, manipulate or otherwise alter the “copyright” and other identifying data of the NOELIA Foundation Reserve or its holders, fingerprints and/or digital identifiers, or any other technical means established for its Recognition.
• The user must refrain from obtaining and even attempting to obtain the contents using means or procedures other than those which, according to the cases, have been made available to this effect or have been indicated to this effect on the website where Generate an optimal the contents or, in general, of those that are habitually used in Internet to this effect provided that they do not entail a risk of damage or unusable of the page, and/or of the CONTENTS.
All trademarks, trade names or distinctive signs of any kind appearing on the website are the property of FUNDACIÓN NOELIA or, where appropriate, third parties that have authorized their use, without it being understood that the use or access to the portal and/or the contents attribute To the user any right over the aforementioned trademarks, trade names and/or distinctive signs, and without being understood to be ceded to the user, none of the exploitation rights that exist or may exist on such content.
Likewise the contents are intellectual property of Fundación Noelia Both intellectual property rights are owned by Fundación Noelia or third parties that have authorized their use to Fundación Noelia and it is to those who corresponds to the exclusive exercise of the rights of exploitation of the same in any form and in particular the rights of reproduction, distribution, public communication and transformation, and are not understood ceded nor authorize their use, in any case, to the users of the page except that it is Obtain such rights in writing from the rightful owner.
The unauthorized use of the information contained in this website, as well as the injury of the intellectual or industrial property rights of FUNDACIÓN NOELIA or of third parties included in the page that have given content, will give rise to the responsibilities Legally established.
Those persons who propose to establish hyperlinks between their Web page and the page must observe and fulfil the following conditions:
No prior authorization will be required when the hyperlink only allows access to the home page, but it will not be able to reproduce it in any way. Any other form of hyperlink will require the express and unequivocal authorization in writing by FUNDACIÓN NOELIA:
• Hyperlinking is restricted to pages that contain inappropriate, profane, defamatory, illegal, obscene, indecent or illicit subjects, names, materials or information, or materials or information that violate any intellectual property rights, Relevant privacy or publicity rights.
• No “frames ” ( “frames “) will be created with the Web page or the FUNDACIÓN NOELIA website.
• There will be No false, inaccurate, or offensive demonstrations or indications about FUNDACIÓN NOELIA, its directors, its employees or collaborators, or the persons who relate to the page for any reason, or the users of the page, or the contents Supplied.
• It will not be stated or implied that FUNDACIÓN NOELIA has authorized the hyperlink or has supervised or assumed in any way the contents offered or made available to the website where the hyperlink is established.
• The Web page where the hyperlink is established can only contain what is strictly necessary to identify the hyperlink’s destination.
• The Web page in which the hyperlink is established will not contain information or illicit contents, contrary to the morals and the generally accepted good customs and to the public order, nor will contain contents contrary or that violate to Any rights of third parties.

FUNDACIÓN NOELIA does not guarantee the absence of interruptions or errors in the access to the page, its contents, or that these are updated, although it will develop its best efforts to, if necessary, avoid them, correct them or update them. Therefore, FUNDACIÓN NOELIA is not responsible for any damages of any kind produced in the user that bring cause of failures or disconnections in the telecommunications networks that cause the suspension, cancellation or interruption of the Service of the Portal during the performance of the same or with prior character.
FUNDACIÓN NOELIA excludes, with the exceptions provided for in the current legislation, any responsibility for damages of any kind that may be due to the lack of availability, continuity or quality of the operation of the page and the Content, to the non-fulfillment of the expectation of utility that the users could have attributed to the page and the contents.
The function of the hyperlinks that appear in this web is exclusively to inform the user about the existence of other webs that contain information about the subject. These hyperlinks do not constitute any suggestion or recommendation.
FUNDACIÓN NOELIA is not responsible for the contents of these linked pages, the operation or utility of the hyperlinks or the result of such links, nor does it guarantee the absence of viruses or other elements in the same that may cause alterations In the computer system (hardware and software), documents or files of the user, excluding any liability for damages of any kind caused to the user for this reason.
The access to the page does not imply the obligation on the part of FUNDACIÓN NOELIA to control the absence of viruses, worms or any other harmful computer element. It is the user, in any case, the availability of tools suitable for the detection and disinfection of harmful software, therefore, FUNDACIÓN NOELIA is not responsible for possible security errors that can occur During the rendering of the service of the page, nor of the possible damages that may be caused to the computer system of the user or of third parties (hardware and software), the files or documents stored in the same one, as a consequence of the presence of virus in the The user’s computer used for the connection to the services and contents of the Web, the malfunction of the browser or the use of non-updated versions thereof.

Page Quality
Given the dynamic and changing environment of the information and services that are provided through the page, FUNDACIÓN NOELIA makes its greatest effort to guarantee the complete veracity, accuracy, reliability, usefulness and/or currentness of the contents. The information contained in the pages that compose this Portal is made available to the interested parties for informative, consultative, informative and publicity, among others.
Fundación Noelia excludes all responsibility for the decisions that the user can take based on this information when the same is correct, as well as for the possible incidents outside of Fundación Noelia. The information is subject to possible periodic changes without notice of its content by enlargement, improvement, correction or updating of the contents.
All notifications and communications made by the Parties shall be valid in accordance with the means permitted in law. Those relating to this page shall be considered effective, for all purposes, if they are made through the page itself.
Content Availability
The provision of the service of the page and of the contents has, in principle, indefinite duration. NOELIA Foundation notwithstanding and without prejudice to the contractually assumed rights, it is authorized to terminate or suspend the provision of the service of the page and/or any of the contents at any time. When this is reasonably possible, FUNDACIÓN NOELIA would first notice the termination or suspension of the page.
Treatment of claims
FUNDACIÓN NOELIA offers its clients a customer service, which can be contacted through, or by post to the following address:
FUNDACIÓN NOELIA-Customer service-Ripollés N º 38 43894 Lligallo del Ganguil, Camales (Tarragona)
The claims that may be submitted by users who holds the status of consumers in the terms of the current legislation, will be treated by the customer service of FUNDACIÓN NOELIA may be referred to any of the contact details Specified in this legal notice, and will be answered by the appropriate means within the maximum period of 30 days.
In case of complaint or response dismissal by FUNDACIÓN NOELIA The consumer can contact the consumer agencies of their autonomous community or use the platform of Regulation (EU) 524/2013 of the European Parliament and of the Council, of 21 May, on Resolution of online litigation in Consumer matters (HTTP://EC.EUROPA.EU/ODR).

For any questions arising on the interpretation, application and fulfillment of this legal notice, as well as the claims that may arise from its use, all the intervening parties are subject to the Spanish courts and tribunals in accordance with The current procedural regulations.
Applicable legislation
The Legal notice is governed by the Spanish legislation and the regulations for the protection of personal data that results from application.

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